Ba\u011f\u0131\u015f\u0131kl\u0131k sisteminin hudut h\u00fccrelerine sald\u0131rmas\u0131na neden olan ender bir hastal\u0131k olan Otoimm\u00fcn Otonomik Gangliopati (AAG) te\u015fhisi konulan gen\u00e7 bayan, toplumsal hayattan b\u00fcsb\u00fct\u00fcn izole bir hayat s\u00fcrmek zorunda kald\u0131\u011f\u0131n\u0131 s\u00f6yl\u00fcyor.<\/p>\n
BA\u011eIRSAKLARININ 3 METREL\u0130K B\u0130R KISMI ALINDI<\/b><\/p>\n
Annie\u2019nin hastal\u0131k s\u00fcreci 12 ya\u015f\u0131nda birinci belirtilerle ba\u015flad\u0131. 15 ya\u015f\u0131nda semptomlar\u0131 a\u011f\u0131rla\u015fmaya ba\u015flad\u0131 ve daima hastanelere gidip gelmek zorunda kald\u0131. 18 ya\u015f\u0131nda hekimler hastal\u0131\u011f\u0131n\u0131 te\u015fhis etti, fakat 22 ya\u015f\u0131na geldi\u011finde durumu \u00f6l\u00fcmc\u00fcl bir hal ald\u0131.
Ba\u011f\u0131rsaklar\u0131n\u0131n bedenine k\u00e2fi besin ve s\u0131v\u0131y\u0131 emememesi nedeniyle ba\u011f\u0131rsak yetmezli\u011fi de ya\u015fayan Annie, tabiplerin ba\u011f\u0131rsaklar\u0131ndan 3 metrelik bir k\u0131sm\u0131 almak zorunda kald\u0131\u011f\u0131n\u0131 s\u00f6yledi.<\/p>\n
“YEMEK YEME F\u0130KR\u0130 B\u0130LE BEN\u0130 HASTA ED\u0130YOR”<\/b><\/p>\n
Annie, yemek yememenin toplumsal hayat\u0131n\u0131 nas\u0131l etkiledi\u011fini \u015fu s\u00f6zlerle anlat\u0131yor:<\/p>\n
“\u0130nsanlara yemek yiyememenin ne manaya geldi\u011fini anlatmak sahiden s\u0131k\u0131nt\u0131. Yemek, birden fazla ki\u015fi i\u00e7in s\u0131radan bir \u015fey olabilir fakat benim i\u00e7in \u00f6nemli bir tehlike. Toplumsal yemeklere kat\u0131lam\u0131yorum, pi\u015fen yeme\u011fin kokusu bile beni hasta ediyor. Be\u015ferler hayatlar\u0131na devam ederken ben adeta bir cehenneme hapsolmu\u015f \u00fczereyim.”<\/p>\n
Aylard\u0131r hastanede yatt\u0131\u011f\u0131n\u0131, bir\u00e7ok ameliyat ve tedavi s\u00fcreci ge\u00e7irdi\u011fini belirten gen\u00e7 bayan, ya\u015fad\u0131\u011f\u0131 yaln\u0131zl\u0131\u011f\u0131 ise \u015fu s\u00f6zlerle lisana getirdi:<\/p>\n
“Kimseye hasta oldu\u011fumu bile s\u00f6ylemek istemedim. Yaln\u0131zca iyile\u015fece\u011fimi d\u00fc\u015f\u00fcn\u00fcyor ve bu devri hayat\u0131mdan \u00e7\u0131karabilece\u011fimi san\u0131yordum. Lakin ne kadar da yan\u0131lm\u0131\u015f\u0131m…”<\/p>\n
“GELECE\u011e\u0130 D\u00dc\u015e\u00dcNEMEMEK KALB\u0130M\u0130 KIRIYOR”<\/b><\/p>\n
Hastal\u0131\u011f\u0131 nedeniyle gelecekle ilgili plan yapamaman\u0131n kendisini en \u00e7ok zorlayan \u015feylerden biri oldu\u011funu s\u00f6yleyen Annie, ya\u015fad\u0131\u011f\u0131 ruhsal y\u00fck\u00fc \u015fu s\u00f6zlerle ifade etti:<\/p>\n
“Hayat\u0131m\u0131n bu kadar k\u0131sa m\u00fcddette sona erece\u011fini hi\u00e7 d\u00fc\u015f\u00fcnmemi\u015ftim. Gelece\u011fe dair hayal bile kuramamak beni mahvediyor. Aylarca s\u00fcren fec\u00ee semptomlar, ameliyatlar ve ila\u00e7larla ya\u015famak zorunday\u0131m. Bu s\u00fcreci ya\u015famayan birinin, \u00e7ekti\u011fim ac\u0131y\u0131 anlamas\u0131 m\u00fcmk\u00fcn de\u011fil.”<\/p>\n","protected":false},"excerpt":{"rendered":"
Avustralya\u2019da ya\u015fayan 24 ya\u015f\u0131ndaki Annie Holland, tam 10 y\u0131ld\u0131r hi\u00e7bir \u015fey yiyemiyor ve yaln\u0131zca damar yoluyla ald\u0131\u011f\u0131 besinlerle hayatta kal\u0131yor.<\/p>\n","protected":false},"author":1,"featured_media":45900,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[43],"tags":[519,523],"class_list":["post-45899","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dunya","tag-hasta","tag-yeme"],"_links":{"self":[{"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/posts\/45899","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/comments?post=45899"}],"version-history":[{"count":1,"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/posts\/45899\/revisions"}],"predecessor-version":[{"id":45901,"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/posts\/45899\/revisions\/45901"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/media\/45900"}],"wp:attachment":[{"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/media?parent=45899"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/categories?post=45899"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ikimisli.tr\/index.php\/wp-json\/wp\/v2\/tags?post=45899"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}